ALS and the Media.

If you're not affected by ALS in some way, you're mostly likely NOT GOING TO KNOW that May is National ALS Awareness Month. Some states have not yet had their Governor's declare May ALS Awareness Month. More recently, Oregon's Governor finally did. Florida is covered, as well as New York, Alaska, and North Dakota. Is YOUR state recognizing May as ALS AWARENESS MONTH? And if so, how is your state promoting awareness? Do you ever hear of ALS on the radio during May? Do you see commercials promoting ALS awareness on your local news stations? Did you know that raising awareness (spreading the word) is our only means of securing funds in hopes of finding a cure and a treatment for this orphan disease? To start with, I have emailed several media representatives in my home state. I have also tried to email Oprah, Ellen DeGeneres, Hugh Jackman, and some of our larger media networks like NBC New York. You can do this too, by visiting Congress.org. Start by asking them if they know that May is National ALS Awareness Day. Ask your local radio and tv stations if they can promote awareness for ALS. Every voice counts, we all add up to a multitude of voices.